Specifically named diseases

Founded in 1970 by families whose loved ones had been diagnosed with type 1 diabetes (T1D), Breakthrough T1D is a tax-exempt nonprofit (503c) organization. As the leading global type 1 diabetes research and advocacy organization, we help make everyd... Read more

The SATB2 Gene Foundation was established to enrich the lives of individuals affected by SATB2-associated syndrome, including those diagnosed with the condition and their families, through support, research, and education.

Believing in the value of sleep, Project Sleep aims to improve public health by educating individuals about the importance of sleep health, sleep equity, and sleep disorders. Project Sleep educates and empowers individuals using events, campaigns, a... Read more

EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure... Read more

LGS Foundation is a nonprofit organization dedicated to providing information about Lennox-Gastaut Syndrome while raising funds for research, services and support for individuals living with LGS and their families.. They are headquartered in BOHEMIA... Read more

The United Leukodystrophy Foundation Inc. is a nonprofit organization. They are headquartered in DEKALB, IL. Help support their cause by creating a fundraiser on their behalf.

International F O P Association Inc. is a nonprofit organization. They are headquartered in North Kansas City, MO. Help support their cause by creating a fundraiser on their behalf.

Costello Syndrome Family Network CSFN is a nonprofit organization. MISSION:  To overcome the challenges of Costello syndrome    GOALS: Raise awareness of Costello syndrome Provide information, support and advocacy to families affected by Costello sy... Read more

Foundation for Usp7-Related Diseases is a nonprofit organization. They are headquartered in FALMOUTH, ME. Help support their cause by creating a fundraiser on their behalf.

Building upon the collective strength of the vasculitis community, the Foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives.